I will never forget the day I received that phone call from my wife. I was at work when she told me the results. I cried myself through a packet of cigarettes as I contemplated thoughts of what lay ahead for her. Such trials and tribulations at such a young age and for how long? Her whole life! My wife and I were a mess.
Our next visit to the specialist is one I will never forget. Our tiny shrinking little 4 year old princess was only just old enough to understand something was wrong with her. She hid under the desk as her specialist told us in no uncertain terms that Jessica has crohn’s disease. It kicked in then, at that moment, the realisation our perfect little baby was going to need to manage a potentially debilitating disease known as Crohn’s.
What is Crohn’s....?
And therein lay a problem. At the time of her diagnosis nobody we knew was even familiar with the disease and so the potential severity of the condition was something I remember explaining to family and friends over and over again. I still remember being advised by our specialist that children with the condition could spend the better part of any year in and out of hospital. We lived in fear of the unknown...
We took her to Fox Studios the day before she was to go into hospital. I remember my wife and I thinking we should let her eat whatever she wants and as much as she can fit in. Even though we explained the food drought just ahead she was still not interested in eating much that day.